Effectiveness of a Parent Education Programme on Quality of Life of Children with Epilepsy Anila K P1,*, Reghunath Rajee2 1Professor, Amrita College of Nursing, AMRITA Vishwa Vidyapeetham, Kochi, Kerala, India 2Principal, Amala College of Nursing, Amalanagar PO., Thrissur, Kerala, India *Corresponding Author: Prof. Anila K.P, M. Sc.(N), Amrita College of Nursing, AMRITA Vishwa Vidyapeetham, Amrita Institute of Medical Sciences, Kochi, Kerala, India, PIN - 682041, E-mail: anilakp@aims.amrita.edu
Online published on 13 November, 2019. Abstract Purpose To assess the effectiveness of a parent education programme on quality of life of children with epilepsy and find correlation between the quality of life and the selected demographic and clinical variables of children. Method The research approach was quantitative and the design was one group pre-test post-test. The sampling technique was convenience sampling. The sample size was 30 children affected with epilepsy. Data was collected by using the standardized tool of Quality of Life in Epilepsy for Adolescents Questionnaire: QOLIE AD 48 Version1 and a questionnaire on demographic data. The analysis was done by using descriptive statistics, paired t-test and Pearson correlation. Results The findings showed that the mean score in pre-test in epilepsy impact in children is 14.14+2.89 and the average value of post-test is 15.80+2.80 and the p-value shows <0.001, so there is a statistical significant change in quality of life in pre and post-test intervention. In memory/concentration, the pre-test mean score is 8.34+1.22 and the post-test mean score is 9.35+1.06. In attitude towards epilepsy, pre-test mean score is 3.48+0.45 and the post-test is 3.98+0.45. In physical functioning the pre-test mean score is 3.73+0.86 and the post-test is 4.77+1.02. In social support, pre-test mean score is 1.42+0.36 and the post-test is 1.42+0.36. Since the p-value is <0.001 for all these areas, the relation with the quality of life of children is statistically significant. The variables of social stigma, school behavior and health perception are also shows significant relation (p-value is <0.05) with the quality of life. The demographic variable of standard of studying and quality of life of children shows positive correlation and it is statistically significant (p value-0.000). The clinical variables of age at diagnosis (0.375, p value-0.04) and duration of seizure time (0.583, p value-0.001) are having statistically significant relation with the quality of life of children with epilepsy. Conclusion The study depicts the importance of implementing an education programme for parents and children with epilepsy it would help to improve knowledge and follow healthy practices and through which the children can lead a good quality of life. Top Keywords Epilepsy, Children, Parent Education Programme, Quality of Life. Top |