Role of Children's Functional Status and Perceived Caregiving Burden in Quality of Life of the Parents of Children with Neurodevelopmental Disabilities Mourya Rajesh Kumar*, Singh R. N.** *Research scholar, Department of Psychology, ins
, Varanasi, Uttar Pradesh. rajkm1988@gmail.com **Professor, Department of Psychology, BHU, Varanasi, India, Uttar Pradesh. singhrnbhu@gmail.com Online published on 24 October, 2018. Abstract Present study aimed to examine the role of children's functional status and perceived caregiving burden in quality of life of the parents of children with neurodevelopmental disabilities. Fifty five parents (N=55) participated in this study and they were divided into three groups: parents of children with intellectual disability (N=29), parents of children with cerebral palsy (N=23), and parents of children with autism (N=3) with age range between 26–55 years. The participants were sampled from different rehabilitation centers and special school at Varanasi. They were administered Disability Severity Assessment Questionnaire, Caregiver Burden Scale and WHOQOL-Brief Hindi version. Correlation analysis was applied to see the relationship which revealed that the child's activities limitation is significantly negatively associated with quality of life and perceived caregiving burden is also significantly negatively associated with QoL). The results of stepwise regression analysis indicated that perceived caregiving burden emerged as significant predictors of quality of life of the parents of children with neuro-developmental disabilities. Thus, children's functional limitations and perceived caregiving burden emerged as significant correlates of quality of life of the parents of children with neuro-developmental disabilities. The results are thoroughly discussed and interpreted and implications of the findings are highlighted. Besides, limitations of the study and suggestions for future research are also indicated. Top Keywords Children's functional status, Perceived burden & QoL of parents. Top |